Recalled by Life by Anthony J. Sattilaro

I knew that if he could live, I could live. Sattilaro, a physician with a terminal illness. And I read an inspiring book about the power of a macrobiotic diet, Recalled By Life, written by Dr. I started reading about the disease, and about health. Then, one day I let out a primal scream and told myself I would not waste one more day in fear and sadness. For example, would a better diet help? My physician at the time was adamant that nothing would make a difference. My hematologist advised me that life expectancy was two-to-five years, and having had it already for a number of years, I figured my time was running out. But a study of prior blood tests showed high protein levels as early as 1986, and an SED rate that had grown to 100 by the time of diagnosis in 1993. I saw doctors for seven years before a diagnosis of WM finally was confirmed. In the mid 1980’s, I began having symptoms that are common to most of us with WM. *Original Story of Hope* Davell Hays: My Very Long Journey with WM and the IWMF Terry and I have made it known to the Universe that we intend to maintain a quality lifestyle and live to at least 100! I miss my WM friends and hope you are all doing well. It is a very small price to pay for being on this earth 34 years after getting WM! I still have my trike named Wally that my fiancée and I enjoy. There are small problems from Ibrutinib, for example finger and toenails sometimes come off or split, rashes appear in a variety of places, and blisters sometimes cover most of my toes. Immediately after our wedding we leave for Rome and a cruise to Greece, followed by 7 more cruises and lots of RV trips. Now we are busy planning our wedding in Yuma, Arizona, and then a reception at the winery in California, all in the next 5 weeks. We just got back from fishing in Alaska with enough fish for a year. I am currently doing rehab to recover from the 12,000 pounds of rock we used in landscaping, and in these past two weeks I have made tremendous progress. We work every day and are now into heavy duty landscaping. We even climbed on the roof to install solar ourselves! We have a greenhouse and two huge vegetable gardens that we share with neighbors and family. We have spent two years totally remodeling every room in his house. I am not working there as often now, as three years ago I met my soul mate, Terry. The winery my family and I started 11 years ago has the highest rating in the county, though Covid has cost us dearly in lost revenue. I have been on Ibrutinib since then, with a nearly normal IGM. In the 6 years since the story of my journey was published, a lot has happened. Davell Hays: Not an Ending but a Great New Beginning

Recalled by Life by Anthony J. Sattilaro